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Informing Consent
  • Home
  • Calling the Shots
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  • A closer look
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Privacy Policy

Privacy Policy 


This privacy notice provides you with details of how we collect and process your personal data through your use of our website. 


Informing Consent is the data controller, and we are responsible for your personal data (referred to as “we”, “us” or “our” in this privacy notice). 


The type of personal information we collect 


We currently collect and process the following information: 


If you send us an email or message, we collect your name, your email address and any other information which you choose to give us. 


When you donate to us we collect your name and contact details. 


How we get the personal information and why we have it 


Direct Interactions 


Most of the personal information we process is provided to us directly by when you contact us. 


We do not collect or process any special category data. 


Purposes for which we will use your personal data 


We use the information that you have given us in order to: 

  • process and manage donations; 
  • manage our relationship with you;  
  • deliver relevant content, newsletters and other types of updates. 


Disclosures of your personal data 


We will not share your personal data. 


Cookies 


A cookie is a small file of letters and numbers that we store on your browser or the hard drive of your computer if you agree. Cookies contain information that is transferred to your computer's hard drive. 


Strictly necessary cookies 


These are cookies that are required for the operation of our website. They include, for example, cookies that enable you to log into secure areas of our website, use a shopping cart or make use of e-billing services. 


Analytical or performance cookies 


These allow us to recognise and count the number of visitors and to see how visitors move around our website when they are using it. This helps us to improve the way our website works, for example, by ensuring that users are finding what they are looking for easily. 


Functionality cookies 


These are used to recognise you when you return to our website. This enables us to personalise our content for you, greet you by name and remember your preferences (for example, your choice of language or region). 


You can set your browser to refuse all or some browser cookies, or to alert you when websites set or access cookies. If you disable or refuse cookies, please note that some parts of this website may become inaccessible or not function properly. 


We do not share the information collected by the cookies with any third parties. 


Lawful Basis 


Under the General Data Protection Regulation (GDPR), the lawful bases we rely on for processing this information are: 

  • Your consent. You are able to remove your consent at any time by contacting us via informingconsent@proton.me 
  • We have a contractual obligation. 
  • We have a legal obligation. 
  • We have a legitimate interest. 


How we store your personal information and how long will we use your personal data 


Your information is securely stored electronically in our IT system within the United Kingdom. 


We will only retain your personal data for as long as reasonably necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, regulatory, tax, accounting or reporting requirements. We may retain your personal data for a longer period in the event of a complaint or if we reasonably believe there is a prospect of litigation in respect to our relationship with you. 


To determine the appropriate retention period for personal data, we consider the amount, nature and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal, regulatory, tax, accounting or other requirements. 


Third-party links 


This website may include links to third-party websites, plug-ins and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy statements. When you leave our website, we encourage you to read the privacy policy of every website you visit. 


Your data protection rights 


In some circumstances you can ask us to delete your data: see your legal rights below for further information. 


Under the data protection law, you have rights including: 


In some circumstances we will anonymise your personal data (so that it can no longer be associated with you) for research or statistical purposes, in which case we may use this information indefinitely without further notice to you. 


Your right of access - You have the right to ask us for copies of your personal information. 


Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete. 


Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances. 


Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances. 


Your right to object to processing - You have the right to object to the processing of your personal information in certain circumstances. 


Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances. 


You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you. 


Please contact us at informingconsent@proton.me if you wish to make a request. 


Changes to this privacy notice 


This privacy notice was last updated on 15 July 2026. 


How to complain 


If you have any concerns about our use of your personal information, you can make a complaint to us at informingconsent@proton.me for data protection queries. 


You can also complain to the ICO if you are unhappy with how we have used your data: 


Information Commissioner’s Office, Wycliffe House Water Lane, Wilmslow, Cheshire, SK9 5AF. 

Helpline number: 0303 123 1113 | ICO website: www.ico.org.uk 

Please note: this website is for information only. It is not a replacement for advice from your primary healthcare provider, and it is not legal advice. 


Please consult your healthcare provider before making any changes to medication, diet or lifestyle.


The views of the individuals featured on this website are not necessarily the views of Informing Consent. However, we are united in our efforts to protect children's health.      


Copyright © 2026 Informing Consent - All Rights Reserved.

  • Privacy Policy
  • Calling the Shots
  • Learning library
  • Talk to your doctor
  • Covid
  • Family health
  • Caring through vaccines
  • A closer look
  • Cancelled
  • Contact
  • Donate

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